RCDP In The News News & Media Regarding RCDP
Learn more about Rhizomelic Chondrodysplasia Punctata by visiting the news and media links below:
MLD is pleased to announce that the U.S. Food and Drug Administration (FDA) has granted PPI-1040, a proprietary synthetic plasmalogen replacement, Orphan Drug Designation (ODD) for the treatment of Rhizomelic Chondrodysplasia Punctata (RCDP).
Fox 8 News: Local Parents Fight To Raise Awareness Of Condition That Plagues Less Than 100 Children In The World
A Word From Our President
President Mindy Lee invites you to join Rhizo Kids Ohio at the 10th Annual Night At The Races Fundraiser:
Siblings With RCDP
Jake and Jordyn are siblings that were only expected to live to be two years at most due to a rare condition known as RCDP. Now 15 and 12, the two are proof that you don't need to walk or talk to make an impact in this world:
3|WKYC: Kids With Rare Disorder Are Beating The Odds
Fund-Raiser Goal Is To Help Area Rhizo Kids
GFPD Scientific & Family Conference
Watch a video of Mindy Lee speaking at the 2017 GFPD Scientific & Family Conference:
My Long-Term Survivors: Rhizomelic Chondrodysplasia Punctata (RCDP)
RhizoKids International Conference 2017
Watch a video from the RhizoKids International Conference 2017:
Watch an amazing video and story by The New York Times!
Parents of children with RCDP, a very rare, terminal form of dwarfism, hope a potential new drug originally developed to treat Alzheimer’s will help their kids, too.
