Date:
Saturday, October 4th 2025
Location:
St. Adalbert
66 Adalbert St.
Berea, OH
Roaring For RhizoKids Night At The Races
Date: Saturday, October 4th 2025
Location: St. Adalbert 66 Adalbert St., Berea, OH
Join our effort to raise money for RhizoKidsOhio, a non-profit organization dedicated to funding research for treatments of the rare and terminal disorder Rhizomelic Chondrodysplasia Punctata (RCDP). This disease affects 1 in every 100,000 live births worldwide, and a 5-year-old child is considered a long-term survivor.
Among the incredible children in Ohio defying the odds are Jake, Jordyn, and Maddie. We also remember Charlie, who gained his angel wings, as we continue fighting for these special children. With your help, we can raise funds to increase awareness, advance research, and improve treatments for those affected by RCDP.
Rhizo Kids Ohio
Our Goal is to Raise Awareness and Funds for Research
The RhizoKids Ohio Chapter was established in 2008 by Mindy Lee, a devoted parent to Jake and Jordyn Cirner, who both live with RCDP Type 2 (Rhizomelic Chondrodysplasia Punctata). We are proud to operate as a 501(c)(3) nonprofit organization, dedicated to raising awareness of RCDP and supporting vital research efforts.
Since its founding, the Ohio Chapter of RhizoKids has held annual fundraisers, collectively generating over $250,000 to date. These funds are crucial in supporting research aimed at finding a cure for this devastating and terminal condition.
We want to connect with our global family
What Is RCDP?
Learn more about Rhizomelic Chondrodysplasia Punctata:
Written by Mary Ellis, this is an explanation of RCDP that parents will understand.
RCDP: Parent Friendly Description
Written by Dr. Nancy Braverman, this is an explanation of RCDP that your doctor will understand.
RCDP: Doctor Friendly Description
Learn more about the RCDP Registry, and how it’s used to predict medical issues.
RCDP National
Registry
Learn more about RCDP updates through our recent news and media links.
RCDP News Information
Support Our Cause!
Join Us in Making a Difference!
Your support means the world to us. RhizoKids Ohio extends heartfelt gratitude for your past generosity, but our mission is far from over. With your continued kindness and dedication, we can keep pushing forward in the fight against RCDP. Together, we can bring hope to countless families in need.
Corporate Sponsorship
We deeply appreciate our Corporate Sponsors, whose generous support enables us to advance our mission of finding a cure for RCDP. Want to join this impactful effort? Discover how you can become a Corporate Sponsor today!
How did you hear about us?
Please let us know how you heard about RhizoKids Ohio by submitting the form below!
