RCDP National Registry

RhizoKids Ohio, in collaboration with RhizoKids International, is proud to sponsor a dedicated registry for individuals diagnosed with Rhizomelic Chondrodysplasia Punctata (RCDP). The goal of this registry is to advance our understanding of RCDP and improve the prediction and treatment of medical challenges associated with the condition.

The registry, officially named “The Rhizomelic Chondrodysplasia Punctata Registry,” is hosted at A.I. duPont Hospital for Children. The registry is overseen by Dr. Michael Bober, a leading physician at the hospital.

Key members of the team include:

• Angie Duker, Study Coordinator, A.I. duPont Hospital for Children
• Cassie Brown, Research Coordinator, A.I. duPont Hospital for Children

If you would like to learn more about this registry or discuss potential participation for yourself or a loved one, please feel free to reach out:

• Dr. Michael Bober: 302-651-5916
• Angie Duker: 302-651-4181
• Cassie Brown: 302-298-7930