Meet Jake


Jake Cirner

Jake Cirner was born on 6/12/2002. He was diagnosed with RCDP Type 2 at 6 months of age. He has under gone multiple surgeries since birth at Rainbow Babies and Children’s Hospital in Cleveland, Ohio. He has had cataract surgery on both eyes, wearing contacts for many years and now has intraocular lenses.

Although he can eat pureed food and baby food, he currently is supplemented with a G-tube for night time feed and medicines. He has also had Ear Tube surgery. In 2009 he had an Osteotomy with a muscle release surgery on both arms to increase mobility. Because of the complexity of this surgery, this procedure was done at Boston Children’s. Jake is a tough little guy and he loves to smile and listen to music.

Help Us End RCDP

Most Children with RCDP do not survive past 5 years of age. Our organization is currently raising monies for research, and working diligently to raise awareness of RCDP.

Your help is needed to put an end to this terrible disease.

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